Improve infrastructure to treat patients: Haemophilia Society
- Detention of separatists shows how fragile is India-Pak peace process
- Pakistan refuses to host CPU meet, says will not invite J&K speaker
- Rajasthan civic polls: BJP loses face in Raje's bastion of Jhalawar, Dholpur
- Brutally assaulted in jail, claims Dec 16 gangrape convict
- CAG indictment of discoms in Delhi: Best news for AAP government
Bombay High Court (HC) has asked the state to ensure haemophiliacs are provided free medicines, but patients are apprehensive. The Mumbai chapter of Haemophilia Society filed a PIL in June, following which HC directed the government to make medicines available free of cost at KEM Hospital, the primary care centre for haemophiliacs.
Haemophilia Society has now sought better infrastructure to treat the 3,000 patients in the state.
"We want all medical colleges in the city (Mumbai) to stock anti-haemophilia factor and have day-care centres, so that patients don't have to travel all the way to KEM. Infrastructure needs to be strengthened," said Balshiram Gadhave, vice-president of the Mumbai chapter.
Haemophilia is a rare blood disorder. Patients lack factors VIII (8) or IX (9) in blood, which prevents clotting. Replacement of the factors, essential to prevent continuous bleeding, costs a minimum Rs 9,000. Haemophilia is common in men and women are carriers.
"We have been working with the government for almost 15 years, most actively in the past 4-5 years, to ensure better haemophilia treatment. Long-pending proposals have resulted in patient deaths. A large number of haemophiliacs in rural areas are being deprived of treatment because of the delay," Gadhave said.
While the state has 3,000 registered patients and the city 1,250, research suggests one in 10,000 men contracts haemophilia. This means a large number of cases are not registered.